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Going to College with Autism

Last year at Max’s 7th grade ARD meeting, (meeting where educators and parents discuss and strategically plan the education plan for the child with special needs) they asked him what he would like to do when he left high school.  He replied “well NFL, obviously.”  The special education lady looked doubtful and asked what his back up plans were should he NOT become an NFL player and he said “fine, I’ll just be an engineer.”  I found this exchange amusing and intriguing.  His back up plan was that he would like to study engineering and we’re already trying to prepare him to think about becoming part of the workforce.  At the time I thought it seemed very early to do but now I realize it’s amazingly forward thinking because trying to prepare kids on the autism spectrum for college involves a lot more than their neurotypical peers.

Check out this fantastic article we found, which is written from the perspective of 21 year old Vassar junior Zoe Gross.  She describes the transition to college is so much more complex for people with autism, the LEAST of it being, in her opinion, the social issues.  She explains that managing the independent aspects of life at college like living in a dorm/apartment, scheduling homework and assignments, making sure she eats properly, showers regularly are FAR more critical than even thinking about making friends.

People with autism often have impaired executive functioning which affects their daily life in a way their peers haven’t thought about it years.  One girl describes how she was hit by a car TWICE in college.  On one of the days she describes being completely overwhelmed with her emotions after getting into an argument, along with the noise and the crowds and she experienced tunnel vision and didn’t even see the car coming until it hit her.  This one particularly scares me as I see this happening with Max.  Just this morning I dropped him at school, not in the drop off lane for a change and watched as he crossed the road IN FRONT of a car that he simply hadn’t noticed!  I find we constantly have to go over  safety issues with him that most 10 year olds have mastered. Then I’m supposed to just send him off to college or let him get a drivers license??????  I can’t even imagine!!!

Apparently over the next 5 years, an estimated 200,000 teenagers on the autism spectrum will be aging out of the services they currently receive in the public school system.  Many of them could be seemingly high functioning but have invisible disabilities that will become highlighted when they go off to college on their own without a parent or caregiver looking out for them.  How will the college system and the newly created adults themselves cope with this huge number of people who need more consideration when trying to immerse them into their next stage of life? I have no answers at all yet sadly. It’s something I will have to think about over the next few years and try to be proactive in the mean time.

Enjoy the article and feel free to send any of your own experiences for us to learn from!

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Autism by the Numbers

The costs of behavioral intervention therapy for children with Autism Spectrum Disorder can reach up to $60,000 per child each year.


It is estimated that medical costs associated with caring for a child with Autism Spectrum Disorder are up to $20,000 higher annually than caring for a child without.


It is estimated that Autism costs the nation $137 billion per year, no doubt the rising ate of children diagnosed will increase this figure dramatically.


In 2010 the National Institute of Health (NIH) allocated just $218 million of it’s $35.6 billion dollar budget to Autism. This number represents less than 0.6% of total NIH funding.


More children will be diagnosed with autism this year than pediatric AIDS, juvenile diabetes and cancer combined.


Autism is the fastest growing developmental disorder in the United States yet the most underfunded.


Autism occurs in all racial, ethnic and socioeconomic groups.


While the cause of Autism is still unclear, current studies indicate genetics and exposure to environmental triggers both play a role in the autism prevalence increase.


Families with one child on the Autism Spectrum have an estimated 20% increased risk of having another child affected.


Between 30-5-% of people with Autism suffer from seizures.


It is estimated that up to 40% of children with Autism do not speak.


Boys are four times more likely to have autism than girls. More specifically that number is 1 in 42 boys and 1 in 189 girls.


In 2014 the Center for Disease Control determined that approximately 1 in 68 children is diagnosed with an Autism Spectrum Disorder (ASD) in the United States. In 2000 this number was 1 in 250 children

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